Becky has a child with IIH (Idiopathic intracranial hypertension). Before she went on the online course for Parents of children with IIH, Becky says she was “struggling with hospitals, medications, constantly - hour-by-hour, day-by-day. She found out about the course on the IIH UK National Charity’s Facebook page and put her name down.

“I was angry in life” she remembers. “I felt lost. IIH is ‘idiopathic’ – there aren’t any answers, no reason for it. Nobody understands what you’re going through. There was no-one who could really relate to the situation I was in. I was angry with the world.”